{"id":86,"date":"2017-09-09T06:33:56","date_gmt":"2017-09-09T06:33:56","guid":{"rendered":"http:\/\/hayleysmom.com\/?p=86"},"modified":"2018-02-11T20:30:24","modified_gmt":"2018-02-11T20:30:24","slug":"a-letter-to-the-woman-that-lives-with-hayleys-heart","status":"publish","type":"post","link":"http:\/\/hayleysmom.com\/index.php\/2017\/09\/09\/a-letter-to-the-woman-that-lives-with-hayleys-heart\/","title":{"rendered":"A letter to the woman that lives with Hayley&#8217;s heart"},"content":{"rendered":"<p>We received information this week about the recipients of Hayey&#8217;s Organ donations. \u00a0The gifts. \u00a0After I called about 12 people to tell them specifically about the recipient of Hayley&#8217;s heart, I decided to sit down and write a letter to that nameless woman. \u00a0I wanted to write it while it was fresh and real. \u00a0Well the letter turned out to be more of a journal post and 7 pages. \u00a0I am still deciding on if I send this version or maybe ease her into Hurricane Dawn. \u00a0I will probably share the depth of detail for future correspondence. \u00a0I am going to share the letter now because it is the most real thing I have written. \u00a0It made me really understand what Organ Donation meant to our family. \u00a0It made me realize that it was not the recipients that needed to thank us, I needed to thank them. \u00a0Thank them for allowing part of Hayley to live on and for me to have a purpose in that horrible time.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: right;\">September 2, 2017<\/p>\n<p><strong>Dear \u201cRecipient\u201d,<\/strong><\/p>\n<p>\u201cRecipient\u201d seems so impersonal a way to address you.\u00a0 We are now connected in a way that is really beyond imagination. Typing this letter also seems impersonal.\u00a0 I feel that I should be hand writing this.\u00a0 But due to my handwriting, I am going to type because I want you to be able to read it! Plus, it is going to be a long letter.<\/p>\n<p>I am Hayley\u2019s Mom.\u00a0 My daughter\u2019s heart continues to beat <strong>thanks to you<\/strong>.\u00a0 We are so grateful to you.\u00a0 You gave me the gift of not witnessing my daughter\u2019s last breath.\u00a0 Because of you I did not have to watch her heart stop beating. \u00a0Because of you, I could say goodbye, lay my head on her chest, hear her heart beat strong and give that heart my blessing to beat for another.\u00a0 During the worst weeks of our lives we were faced with decisions that no parent should ever have to make.\u00a0 This was not supposed to happen.\u00a0 I am uncertain where to start and what information to share with you.\u00a0 I need you to know that you have provided me with comfort during an incredibly painful time.\u00a0 I think I will just tell you the entire story.<\/p>\n<p><strong>Our donation story:<\/strong><\/p>\n<p>Hayley turned 19 years old on April 29<sup>th<\/sup> of this year.\u00a0 She had just finished her first year of college at Western Washington University.\u00a0 She loved Bellingham.\u00a0 If we meet I can tell you stories about how homesick she was that first quarter, how our relationship grew and what we learned about parenting college freshman!\u00a0 Since you have three children, I am guessing you would appreciate that advice.\u00a0 Hayley loved her family, Scott her father, Henry her 15-year-old brother, myself and our three rescue dogs.\u00a0 Everyone says their child loves their family.\u00a0\u00a0 But I mean she LOVED us.\u00a0 She humbled us with her love.\u00a0 We worried at times that it wasn\u2019t normal or healthy for a teenager to like her parents this much, maybe we were doing something wrong.<\/p>\n<p>Hayley was my daughter and my best friend.\u00a0 She would rather spend time with me and my girlfriends than anything else.\u00a0 Don\u2019t get me wrong she had plenty of other friends.\u00a0 But we needed to be near each other always.\u00a0 That is one of the reasons she chose WWU.\u00a0 We were less than 2 hours away from each other and because of my job and her job we never had to go more than 14 days without each other.\u00a0 We worried this was keeping her from really becoming connected to college and making new friends.\u00a0 But she had so much love to give she was able to balance both and was ready to really spread her wings September 27<sup>th<\/sup> with the start of her Sophomore year.\u00a0 She was majoring in Sociology with Criminal Justice as her focus.\u00a0 She was on track to graduate in 2020, the same year her brother graduates high school.\u00a0 She was well on her way and her class schedule laid out all the way to graduation to earn her major and a minor in Psychology and Communications.\u00a0 I would love to tell you in person about the ride-along she did with the only female campus police officer and how much this solidified that she wanted a career in law enforcement.\u00a0 She wanted to change lives and make a difference.\u00a0 By saving and changing the lives of so many people with her donations she basically accomplished her career goals on one big day.<\/p>\n<p>Hayley\u2019s passion was Dance.\u00a0 From her first dance class at age 3 she was hooked and I was in for quite a ride.\u00a0 Now I was not just a <em>Mom<\/em> but a <em>Dance Mom<\/em> (ugh).\u00a0 She trained in Ballet, Jazz, Hip Hop, Lyrical and Tap.\u00a0 She began competing at the age of 7 with a local studio.\u00a0 She competed with several studio teams until Freshman year of High School.\u00a0 At that time, she had the opportunity to be the first Freshman class at a school with a very competitive team.\u00a0 This team change helped to reduce our travel load and be involved in school spirit.\u00a0 She made this team.\u00a0 She was so happy.\u00a0 We have been told that you are a dancer, but what does dance have to do with her donation story, you<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-87\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/June-29-2002-15-225x300.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/June-29-2002-15-225x300.jpg 225w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/June-29-2002-15-768x1024.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/June-29-2002-15.jpg 1536w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/><\/p>\n<p>may be asking.\u00a0 It does.\u00a0 During the third year of competing we had an \u201cissue\u201d.\u00a0 Back at the start of sophomore year she had been hospitalized for ovarian cysts.\u00a0 She ended up having her first surgery and being diagnosed with PCOS.\u00a0 One of the symptoms of PCOS is weight gain and brutal hormone issues during puberty.\u00a0 During her Junior year she began to grow and gain some weight.\u00a0 Her breasts grew from perfect size B to large double D.\u00a0 The coach had a taste for skimpy and daring costuming much to the horror of the parents.\u00a0 But this was a situation where if you messed with the coach, she messed with your kid.\u00a0 This was the first domino in a row that led to Hayley\u2019s death.\u00a0 This costume was backless and strapless.\u00a0 Which is quite an amazing feat.\u00a0 The costume looked beautiful on girls with size A or smaller.\u00a0 This described most of the team, with one exception.\u00a0 During the first competition one of Hayley\u2019s girls came out of her costume and she had to continue to dance for an excruciating 3 more minutes.\u00a0 I spent the next few months leading up to the state competition trying desperately to make this costume work for her.\u00a0 She was mortified and self-conscious.\u00a0 They do not make backless and strapless dance bras for a 34DD.\u00a0 The coach promised to make costume changes for the state competition.\u00a0 Many of the other girls were thankful to hear this.\u00a0 Two weeks before state she cut Hayley from the performance instead of changing the costume.\u00a0 Not one to stay quiet when someone hurts my kid, I brought it to the attention of administration and we got nowhere.\u00a0 In fact, at the next tryout, she cut Hayley from the team entirely, a fourth-year senior.\u00a0 A returning member had never been cut from the team during this coach\u2019s ten-year tenure.\u00a0 You can imagine the devastation.\u00a0 She had been on a dance team for ten years at this point.\u00a0 She danced 20-30 hours a week for years.\u00a0 She was never the best on the team, not even close.\u00a0 But she always smiled and she loved it.\u00a0 The rest of the story is irrelevant.\u00a0 Her passion was taken away without notice. Her spirit was damaged.\u00a0 Her self-esteem low.\u00a0 \u00a0This is when she started talking about wanting breast reduction.<\/p>\n<p>For the next two years it was all she could talk about.\u00a0 By the end of her freshman year of college she was a 36H.\u00a0 Yes, an H for Hayley!\u00a0 I still encouraged her to wait until after college.\u00a0 At the same time, this summer my job with a local nonprofit ended.\u00a0 We have more in common than just my daughter\u2019s heart.\u00a0 In 2009, I suffered Cardiac Arrest at the age of 38.\u00a0 Heart Disease ran in my family. It killed my father at age 52.\u00a0 This won me a pacemaker and led me down a path of volunteering for the American Heart Association.\u00a0 DON\u2019T FREAK OUT.\u00a0 Being a very paranoid Mom, both my children have been screened multiple times and did not inherit my heart condition or my eye color.\u00a0 Your new heart is perfect!<\/p>\n<p>In 2012, I changed careers to run youth programs in Western Washington for AHA.\u00a0 I worked with schools fundraising for people with special hearts.\u00a0 My focus was Jump Rope for Heart, in Elementary schools.\u00a0 My job was to fundraise, educate and create awareness about heart disease with a focus on women and moms.\u00a0 I raised over two million dollars in four years.\u00a0 I also developed a passion for working with High School students and started a mentoring program where I worked with a handful of High Schools to create awareness amongst their peers for prevention, and CPR.\u00a0 I covered Blaine to Auburn and was the contact for 800 schools.\u00a0 This is what allowed me to spend time in Bellingham during Hayley\u2019s freshman year at WWU.\u00a0 Hayley was constantly by my side.\u00a0 She worked the Heart Galas, Go Red for Women Luncheons, the Heart Walk and even wore a Lion costume at school assemblies this past year.<\/p>\n<p>The physical demands of this job finally caught up with me last fall.\u00a0 Often driving 200 miles a day and organizing 200 events in a 9-month time frame was physically demanding even for the younger directors.\u00a0 Add being someone living with Heart Disease and it was a recipe for disaster.\u00a0 My job ended for these reasons in April.\u00a0 We made the decision that I would not look for new work until the fall.\u00a0 I will forever be grateful for the time she and I spent together from June 6<sup>th<\/sup> to July 11<sup>th<\/sup>.\u00a0 I had good insurance with AHA that would be ending at the end of July.\u00a0 Hayley was still insistent that Breast Reduction was what she wanted.\u00a0 She had gained a maturity over the past year.\u00a0 I knew this was not just about what happened her senior year but a thoughtful decision made with her health in mind.\u00a0 It is very difficult to be physically active with a 36H rack.<\/p>\n<p>I relented and made her a consultation appointment in June with a surgeon recommended by friends that had been to him for mastectomy reconstruction work.\u00a0 I told Hayley that if the insurance agreed to pay we would go ahead and do it in July to allow time to recover before school.\u00a0 But honestly, I had heard from so many people that insurance companies make you jump through so many hoops before they will pay.\u00a0 I just didn\u2019t think it would happen.\u00a0 She knew if insurance did not say yes, it would have to wait until I was working again.\u00a0 I was shocked two weeks later when surgery was approved as 100% medically necessary and her surgeon said it would be \u201clife altering\u201d for her.\u00a0 Her pain would go away, she could be active and her confidence would return.\u00a0 The surgery was scheduled for July 11<sup>th<\/sup>.\u00a0 He fit her in because he just really fell in love with her personality and wanted to make this happen for her and he was due to leave for a long vacation and it was now or wait until next summer.<\/p>\n<p>I will tell you what happen, but not in detail.\u00a0 I would prefer to share those personal details in person.\u00a0 To be honest they are still very raw emotionally.\u00a0 The surgeon used an upper half epidural for the surgery.\u00a0 I did not even question this decision because that should be much safer than general anesthesia.\u00a0 From the minute, they handed her off to us in recovery she was vomiting and had a horrible headache.\u00a0 They sent her home with us, it was a Tuesday.\u00a0 By ten that night on the advice of our surgeon we were in the emergency room of the Issaquah Swedish Hospital.\u00a0 The symptoms appeared to be from a lumbar puncture from the epidural.\u00a0 She was admitted to the hospital to control her pain and decide how to proceed.\u00a0 She did not receive adequate care.\u00a0 At one point our plastic surgeon drove to Issaquah and begin giving orders on how to care for her.\u00a0 She had not eaten in several days and threw up every 1 to 2 hours, yet they had removed her IV Fluids. He even threatened to put her in his car and take her to Seattle where they had more depth in their care.\u00a0 On Saturday, we chose to discharge her ourselves with the plan to take her to an appointment Monday in Seattle to a specialist.\u00a0 We were exhausted, but she seemed to be turning the corner.\u00a0 On early Monday morning things escalated and we had her transported form our home to Swedish First Hill.\u00a0 They struggled to control her pain.\u00a0 By 10:00 am a CT Scan finally revealed a clot on her brain and she was transferred to Swedish Cherry Hill ICU around 7:00 pm.\u00a0 I will not share all the details unless you need to know.\u00a0 But at 1:00 am Tuesday, Hayley suffered a stroke.\u00a0 I witnessed Chest compressions being done on my child.\u00a0 They could intubate her and go to surgery.\u00a0 The clot was extensive and in a very rare location.\u00a0 It was incredibly rare.\u00a0 The surgeon that tried to clear the clot is the one that has performed the most of these surgeries in the nation.\u00a0 Her body survived the surgery on Tuesday, July 18<sup>th<\/sup>.\u00a0 We were told the surgery was not successful.\u00a0 There was too much damage and we would have to wait and see.\u00a0 As a mother, I knew.\u00a0 I was not shy to look in her eyes.\u00a0 I knew she was gone.\u00a0 The shock set in.\u00a0 I am not telling you any of this to make you feel bad, do not cry for me, I have a huge support group of friends already doing enough crying for me<strong>.\u00a0 <\/strong><\/p>\n<p><strong>I just need you to really hear me.\u00a0 You are the reason I survived the next week.\u00a0 It was all about you.<\/strong><\/p>\n<p>On Wednesday, we were told she was probably brain dead.\u00a0 Scott and I sat with our pediatrician as we listened.\u00a0 We all were holding hands.\u00a0 He asked us to sign a Do Not Resuscitate Order.\u00a0 I refused.\u00a0 He again persisted.\u00a0 I asked him has it been determined 100% that she is gone.\u00a0 He said the protocol to declare her officially brain dead was not complete yet.\u00a0 With our pediatricians support we refused to sign the DNR.\u00a0 Again, I truly knew in my broken heart she was gone.\u00a0 But there was this tickle in my brain that I could not quite reach.\u00a0 It told me this journey was not over.<\/p>\n<p>On July 20<sup>th<\/sup> at 9:31 p.m., Hayley was pronounced dead.\u00a0 It was surreal.\u00a0 She was warm, I could hear her heart beat, I could hold her hand and caress her face and her hair.\u00a0 She was truly beautiful.\u00a0 Again, we were asked to sign the DNR.\u00a0 We did.\u00a0 At this point Scott and I retreated to privacy to make decisions that are every parent\u2019s worst nightmare.\u00a0 My brain barely was functioning from lack of sleep, stress and ugly crying for days.\u00a0 Remember that tickle, it was still there and I was desperately trying to reach it.\u00a0 Finally, I did!\u00a0 I asked my partner in life of 27 years did I miss the mention of organ donation?\u00a0 He said no, that was never mentioned.\u00a0 He said I think that is what Hayley would want.\u00a0 I told him I KNOW that was what she wanted.\u00a0 I begged him to find that doctor and rip the DNR to shreds until we asked about the possibility of organ donation.\u00a0 While Scott sought out the Doctor, I told my friend to guard Hayley.\u00a0 If she coded I didn\u2019t care if she had to do CPR herself but we were not done yet.<\/p>\n<p><strong>You see I DID KNOW<\/strong>.<\/p>\n<p>About a month before, I waited in our front room for Hayley to get home from work. It was Father\u2019s Day Weekend and she was home from school to work a weekend and be there for her Dad.\u00a0 I had the news on.\u00a0 As was our routine she threw herself in the other chair and complained about her feet and how rude customers at the caf\u00e9 had been.\u00a0 A story caught our attention.\u00a0 A man, Bill Conner, was riding his bike from Wisconsin to Florida to raise awareness about organ donation and to tell the story of his Daughter, Abbey.\u00a0 Abbey had died tragically at age 20 while on vacation with her family in Mexico.\u00a0 Abbey gave the gift of life.\u00a0 That day in New Orleans as he rode his bike into town a young 23-year-old man waited for him with a stethoscope in his hand.\u00a0 You see he was the recipient of Abbey\u2019s heart and his Father\u2019s Day gift to Bill was the opportunity to hear it beat again.\u00a0 I sniffled.\u00a0 Hayley said, \u201cMom are you crying, Geez!\u201d.\u00a0 I denied I was but noticed she reached for a Kleenex too.\u00a0 After the story was complete and our tears (the ones that were not there) were done.\u00a0 I turned to Hayley and asked, \u201cHey would you ride your bike across several states to listen to my heart?\u201d.\u00a0 Her quick-witted response was \u201cF@$k NO, but I might consider riding one of those cute mopeds, it would probably be retro blue\u201d.\u00a0 She then asked me the same question that she asked me the day she was 15 and we were in the DMV getting her permit.\u00a0 She was asked if she wanted to be an organ donor.\u00a0 She said, \u201cMom why would somebody NOT be an organ donor?\u201d\u00a0 I didn\u2019t have an answer.\u00a0 I came up with some possibilities but we both agreed that as far as we were concerned anybody that did not donate if they could, was being selfish.\u00a0 Yes, it was judgmental but it was how we felt. That day in June, Hayley was passionate and thoughtful in this conversation and very clear about what her decision would be.\u00a0 She then transformed back into a 19-year-old, said she was taking a shower and catching up on the Kardashians.<\/p>\n<p>So, you see, I did KNOW.\u00a0 Hayley wanted you to have her heart.\u00a0 This was <strong>HER<\/strong> choice and I could not be prouder of my child.\u00a0 This was when LifeCenter Northwest became involved.\u00a0 We answered all their questions and listened to how complicated the process would be.\u00a0 Our team was amazing.\u00a0 (remind me to tell you the tattoo story) We were not leaving that hospital until she did.\u00a0 Pretty quickly we learned that we had a match for both kidneys and that both were 100% matches.\u00a0 Which we learned later was extraordinary beyond comprehension.\u00a0 It would be as if those two strangers were receiving their own genetic kidneys.\u00a0 We talked about other organs and the work that was being done.\u00a0 It was explained that most procurement surgeries take place at night when the Operating Rooms were available.\u00a0 Each evening for 4 days we had to make the decision if we could wait one more day to continue looking for matches or to proceed on the kidneys.\u00a0 I asked constantly about her heart.\u00a0 You see there were no takers yet.\u00a0 I was appalled how could no one want my beautiful, loving compassionate daughter\u2019s heart.\u00a0 But there was hope that day, her heart function had improved significantly over night.\u00a0 If we could stay the course there was hope that a match might be found.\u00a0 I can only tell you that yes it was a roller coaster and it delayed the inevitable.\u00a0 We were not leaving that hospital with our daughter.\u00a0 She was our sunshine.\u00a0 Our family truly revolved around her.\u00a0 But this is what I NEED you to hear.\u00a0 Those extra hours, days in the hospital were worth the extra pain because we knew without a doubt Hayley would want us to fight for her.\u00a0 Fight for her right to help as many strangers as possible.\u00a0 Her body and her heart were not giving up despite the doctor\u2019s predictions.<\/p>\n<p>Saturday night, I will confess when we got ready for the family meeting with our donor team, we were feeling the weight of our pain and were ready to go home.\u00a0 This is when we were told there was a potential match for her heart. \u00a0Before it had been only a possibility of a match.\u00a0 Now we had a match, we had a recipient to think of.\u00a0 It was not some random endless list of people.\u00a0 There was a person.\u00a0 That person had family and friends.\u00a0 I knew that this was my final purpose as Hayley\u2019s mom.\u00a0 It was my job to make sure she got through that night and that I might have the chance to hear her heart beat for another.\u00a0 Prior to Saturday I struggled to stay in her hospital room for extended amounts of time without losing all my strength.\u00a0 My husband spent the nights with her, there was only room for one of us in the room.\u00a0 That last night he finally crashed in our little rented room on another floor.\u00a0 It was my job to guard her for that final night.\u00a0 You see we never left her alone that week.\u00a0 We had a support group made of family and my fierce group of girlfriends (always known as the B.U.M.s, Back Up Moms).\u00a0 All of them were just as determined to make sure our wishes happened that week.\u00a0 There was always one of us in that room.\u00a0 I was obsessed with making sure she made it to procurement.\u00a0 I encouraged her, I did everything to make her comfortable that night.\u00a0 I spent that night telling our amazing nurse all about Hayley.\u00a0 That morning we were told that the recipient\u2019s surgeon was willing to move forward with the transplant despite less than perfect numbers on the tests.\u00a0 I knew in every cell of my weary body that it was going to happen.\u00a0 We had a time, 5:00 Sunday, July 23<sup>rd<\/sup>.\u00a0 Hayley was going to save the lives of two kidney patients, a liver to Canada, corneas for sight and countless others with tissue donation.\u00a0 But I thought of that father on the bike and the dream of hearing my daughter\u2019s heart beat for another.\u00a0 Her heart had found its next home.\u00a0 This gave us feelings of hope, love, pride and comfort that were a balm to the grief and excruciating pain we were feeling.<\/p>\n<p>Her amazing night nurse asked to come back even though it was her day off and personally escort Hayley to the O.R.\u00a0 Our support group waited outside of her room as we met the procurement team.\u00a0 They were amazing compassionate people.\u00a0 We knew we were handing over the most precious thing in the world to them.\u00a0 We were not just putting our daughter in their hands but giving them the enormous task of making Hayley\u2019s passion for organ donation a reality.\u00a0 Our nurse, myself and Scott held hands and walked behind Hayley as she was taken to the elevator.\u00a0 Our team of friends and family, walked behind us.\u00a0 It reminded me of a parade.<\/p>\n<p>You gave me the gift of not having to witness her last breath.\u00a0 When she left our presence, she was alive and had a purpose.\u00a0 The essence of Hayley was gone, but her body would accomplish something miraculous.\u00a0 It was the greatest comfort.\u00a0 We waited until the elevator left and came back empty.\u00a0 We finally left that hospital after a week and our support group gathered at our home.\u00a0 We all waited to hear that the surgery was done.\u00a0 We finally ate, we all cried and we told Hayley stories.\u00a0 I could not focus on what was happening, but only what the result would be.\u00a0 We were not expecting to get the call that it was complete until after 10:00.\u00a0 At 8:13 on July 23<sup>rd<\/sup> I received a text from our donor team.\u00a0\u00a0 <em>Well \u2013 Hayley\u2019s heart is PERFECT!\u00a0 \u00a0<\/em>There was more about her Liver and Kidneys.\u00a0 I barely saw that.\u00a0 I took the first deep breath in days.\u00a0 Of course, her heart was perfect.\u00a0 She was Hayley.\u00a0 I had fulfilled my duty as her Mother.\u00a0 We were so deeply grateful that because of Hayley several other families were not going to walk the same path that we were on.\u00a0 I need you to know that YOU did that.\u00a0 You gave us comfort that no hugs could.\u00a0 Something good from the bad.\u00a0 I could not have her back but another family could have their person back.<\/p>\n<p>Last night we received the letter from LifeCenter that gave us a little information about our recipients.\u00a0 I got the mail late in the evening.\u00a0 We debated opening it.\u00a0 My husband thought we should wait but he knew as soon as he went to bed I would be opening that letter.\u00a0 I HAD to know if the recipients were doing well.\u00a0 I needed to know if I had to grieve for another person.\u00a0 I read the letter out loud to my husband in a steady voice until I reached the 5<sup>th<\/sup> paragraph and had caught some key words.\u00a0 I was barely able to get the sentences out.<\/p>\n<p><em>Hayley\u2019s heart was given to a woman in her thirties with three children.\u00a0 She began feeling better immediately following the transplant surgery, and is looking forward to spending time with her family, and returning to yoga and dance classes.\u00a0 She is so thankful for this amazing gift. <\/em><\/p>\n<p>We were both crying hard when we read <em>three children<\/em>.\u00a0 When we saw the word <em>dance<\/em> it was an all-out sobbing, ugly cry that startled our son when he walked in to see what was going on.\u00a0 \u00a0I cried out \u201cHayley\u2019s heart will dance again; our person is <strong>a mom AND a dancer<\/strong>. \u00a0I am so happy\u201d.\u00a0 I think our son was confused by the happy part, and a bit skeptical because both of his parents were weeping at this point.\u00a0 I then spent the next several hours calling every single person that had supported us that week.\u00a0 Some didn\u2019t even mind being woken up.\u00a0 I read them the entire letter and just like us they all begin to weep at that 5<sup>th<\/sup> paragraph.\u00a0 So many responses \u201cHow could that happen?\u00a0 How could her heart go to exactly the right person?\u00a0 A mom and dancer, are you joking\u201d<\/p>\n<p>I scanned the letter and emailed it to my brother and sister in law and my mom just so they could see it in black and white.\u00a0 For the first time in a month I felt that the nightmare that started on July 11<sup>th<\/sup> had ended and we could move on to the next phase of our tragic journey.\u00a0 My grief is not less.\u00a0 My pain is not softened.\u00a0 My days are not less lonely.\u00a0 But now there is that tickle again.\u00a0 Except now I know what that tickle means.\u00a0 That tickle in my grieving, hazy brain is <strong>hope<\/strong>.\u00a0 Hope that Hayley\u2019s heart, the one I heard for the first time this exact week 20 years ago in utero; would continue to beat for you.\u00a0 That it beats long enough to raise your children, long enough to have the memories that I won\u2019t experience with Hayley.\u00a0 If this letter is it. If we don\u2019t meet. I will survive.\u00a0 But that tickle is there, the hope that I can say to you and your family in person, to say Thank You for what you gave us.\u00a0 They say the donor family is the one that gives the gift of life.\u00a0 I disagree, the recipient also gives a gift.\u00a0 The knowledge that Hayley has made a difference for another person validates my love for her and my role as Hayley\u2019s mom.<\/p>\n<p>I look forward to telling you Hayley stories.\u00a0 I want to tell you about her amazing sense of humor, her love for Disneyland.\u00a0 I want to tell you about the #belikehayley movement, the glassybaby named after her.\u00a0 I want to tell you about her service, about the number of people that she impacted in her short 19 years and how admired her heart was.\u00a0 I want to tell you about her love of music.\u00a0 I even want to tell you about the times she drove me crazy and her potty mouth.<\/p>\n<p>I would love to meet you.\u00a0 I would love to know what I should call Hayley\u2019s heart.\u00a0 Because it is no longer hers, it is yours.\u00a0 I would love to have your name so that I can call it something other than the \u201crecipient\u2019s heart\u201d.\u00a0 Your joy in no way will make my grief worse.\u00a0 Nothing is going to take away my pain.\u00a0 But know that meeting you and your family would be the greatest gift you could give to our family.<\/p>\n<p><strong>With Pride, Joy, Grief &amp; Hope,<\/strong><\/p>\n<p><strong>Hayley\u2019s Mom, Dawn<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-95\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/2011-1-200x300.jpg\" alt=\"\" width=\"200\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/2011-1-200x300.jpg 200w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/2011-1-768x1152.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/2011-1-683x1024.jpg 683w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-92\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/photo-shoot-2007-2-201x300.jpg\" alt=\"\" width=\"201\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/photo-shoot-2007-2-201x300.jpg 201w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/photo-shoot-2007-2-768x1147.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/photo-shoot-2007-2-685x1024.jpg 685w\" sizes=\"auto, (max-width: 201px) 100vw, 201px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-91\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/C18DF969-7289-4AA7-A94D-D575DB1732A1-169x300.jpg\" alt=\"\" width=\"169\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/C18DF969-7289-4AA7-A94D-D575DB1732A1-169x300.jpg 169w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/C18DF969-7289-4AA7-A94D-D575DB1732A1-575x1024.jpg 575w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/C18DF969-7289-4AA7-A94D-D575DB1732A1.jpg 719w\" sizes=\"auto, (max-width: 169px) 100vw, 169px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-90\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG_0274-e1504938541941-225x300.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG_0274-e1504938541941-225x300.jpg 225w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG_0274-e1504938541941-768x1024.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG_0274-e1504938541941.jpg 1932w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-88\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender-300x300.jpg\" alt=\"\" width=\"300\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender-300x300.jpg 300w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender-150x150.jpg 150w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender-768x768.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender-100x100.jpg 100w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/FullSizeRender.jpg 826w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-96 aligncenter\" src=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG-221x300.jpg\" alt=\"\" width=\"221\" height=\"300\" srcset=\"http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG-221x300.jpg 221w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG-768x1041.jpg 768w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG-755x1024.jpg 755w, http:\/\/hayleysmom.com\/wp-content\/uploads\/2017\/09\/IMG.jpg 930w\" sizes=\"auto, (max-width: 221px) 100vw, 221px\" \/><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>We received information this week about the recipients of Hayey&#8217;s Organ donations. \u00a0The gifts. \u00a0After I called about 12 people to tell them specifically about the recipient of Hayley&#8217;s heart, I decided to sit down and write a letter to that nameless woman. \u00a0I wanted to write it while it was fresh and real. \u00a0Well &hellip; <\/p>\n<p class=\"link-more\"><a href=\"http:\/\/hayleysmom.com\/index.php\/2017\/09\/09\/a-letter-to-the-woman-that-lives-with-hayleys-heart\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;A letter to the woman that lives with Hayley&#8217;s heart&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-86","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/posts\/86","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/comments?post=86"}],"version-history":[{"count":4,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/posts\/86\/revisions"}],"predecessor-version":[{"id":332,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/posts\/86\/revisions\/332"}],"wp:attachment":[{"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/media?parent=86"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/categories?post=86"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/hayleysmom.com\/index.php\/wp-json\/wp\/v2\/tags?post=86"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}