Hayley’s Story, Part Three

July 19, 2022

The night terrors are back this past week. I am sure the calendar is the trigger. I had one last night. On July 17, 2017, at 9:00 pm, Hayley was settled into the Cherry Hill ICU. It had been one of the worse days of my life. We felt better, even though the neurologist did not meet us there to discuss her treatment plan as she promised. We took this to mean it was not an emergency. We knew what was causing her excruciating pain, a blood clot at the base of her brain. They were planning to start the blood thinner, Heparin, at 10:00 pm to break up the clot. The ICU doctor did not tell us anything about her condition. We didn’t know the location of the clot. We didn’t know the treatment plan. We didn’t know that it was a one in a million type of clot. We thought she was finally diagnosis and let’s fix it. She was comfortable and out of pain. Only one of us could stay in the small room. We decided it would be Scott. My plan was to head home to check on Henry. I would sleep a few hours and come back maybe between 2:00 and 4:00. I had no intention of missing rounds. It was time to get answers and see how long it would take for them to fix her. This will always be the most traumatic and tragic decision I have made as a parent.

The episodes at first were very specific. PTSD is like that. It is not one symptom that is the same thing at the same time. People with PTSD have intense, disturbing thoughts and feelings related to their experience that last long after the traumatic event has ended. They may relive the event through flashbacks or nightmares; they may feel sadness, fear or anger; and they may feel detached or estranged from other people.

According to behavioral health experts one of the five symptoms of PTSD is: Internal reminders of a traumatic event. These signs of trauma typically present as nightmares or flashbacks. It’s important to realize that these are not simply memories. They are unwanted, intrusive episodes in which a person feels as though they are in the life threatening situation again – like they’re watching a movie or seeing it unfold in front of them. It feels very real to them.

I have nightmares that are so realistic and so detailed about things that had actually happened. It takes hours, even days to shake it. You wake up and you are stuck between the memory and current reality. The most terrifying dreams are when my mind takes me to after July 11th but before July 18th. In the dream I know the answer. I just need to get them to treat the issue before it is too late. According to the experts she could have been saved every single fucking day, all the way to about two hours before she crashed. I ask myself every single day what I could have done to prevent her death.

The dreams are terrifying. The general theme is trying to get help, trying to make the one person listen. I am running out of time. The terror is real. My mind and body truly do not believe I am in a bed in present day. It is like a runaway train, picking up speed. It never ends until I wake up screaming.

Sometimes the dreams make little sense. The one common thread is that they are very detailed and complicated. Sort of like a Tim Burton movie. There are real people in these “movies”. The genre is always the same. I am trying to find something or someone. I am always trying to convince someone or even Hayley herself that she is not dead.

Scott and I have slept in different rooms more and more as the years have passed. Not because I don’t want to share the bed with him. Sometimes it would be one of us snoring. Sometimes it would be moving too much. He has restless leg syndrome. He sleeps pretty soundly. I wake easily. Good sleep has eluded me for years. It has become more important since losing Hayley. I have spent so much daylight sleeping. Sleeping is an escape. I have worked hard and tried everything to make sure I can get as much of that depressed sleep during the appropriate hours. It is a battle I continue to lose. I also do not want him to be present for the night terrors. A year ago I took a trip to Mexico and had two different friends room with me. Both witnessed different versions of my night terrors. Both were very concerned. Sharing a hotel room is no longer an option.

Scott believes that if he does not acknowledge something, it does not exist. His ability to compartmentalize is a skill I envy. He has never confirmed that I wake up screaming. I just know that I do. My mouth and throat is dry, my heart is beating so loud, and many times I am soaked in sweat. Henry has heard the screaming. Everyone on the hospital floor heard it on June 18, 2017. I will never know if Hayley heard me.

On July 11th after the meeting with the anesthesiologist, I waited with Hayley. The surgical nurse came to get her. We hugged and kissed her. I assured her we would not leave that family waiting room. She reminded me that I needed to hit the prime day sale on Amazon to get what she needed for her new apartment in the fall. The nurse indicated how long the surgery would take. Packages from Amazon and home goods from Macys were waiting on the porch or in the house when I came home without her. I actually returned most of the items in a daze. “Why are you returning these?” “My daughter died two weeks ago and she won’t need them for her apartment” I was numb.

We settled in to wait. The amount of time we had been told came and went. A nurse came out to tell us that the surgery was running long. She assured us everything was going well. She turned to leave. Nope. “Excuse me, why is the surgery going long?”. Her response “The procedure got started late”. I groaned to Scott. I hoped that they gave her some anxiety meds while she had to wait. Her nerves must have been off the charts. I had no idea.

Within about 15 minutes of that update, the surgery coordinator came in to see us. She was the one that scheduled the surgery and the appointments. She was the one that dealt with the insurance. She had been a great support system for Hayley and I during the short amount of time we had been working with her. She felt very protective over Hayley. She indicated that she knew someone had told us the surgery was running long. She also suggested that they had not told us exactly why. She wanted us to know that it started late because there had been issues with the epidural. WTF? Evidently the epidural was difficult to place and that she did faint. That was why it was two hours late? Did that mean he worked on the epidural for two fucking hours? That must have been torture for Hayley. I was livid. What that meant to me was he did not listen to a word I said. Or he did listen and then ignored our very specific requests. I was not angry because I thought there would be complications. It did not occur to me that there would be a problem because the surgery went forward. But I was not a happy mama bear. As it turned out this delay and this arrogant man would end up costing Hayley her life.

Time for Hayley’s Story, Part One

It has been a very long time (February 2021) since I posted an entry on this Blog. It’s purpose will always be to share my grief journey with the hope that it helps someone on theirs. I hope it helps you understand those around you that are grieving a loss. The reason that I had to stop posting is pretty simple, two words, Legal Action. We filed a wrongful death lawsuit on behalf of Hayley in July 2020. This alone has been a huge learning experience that I will get more deeply into at another time. We were able to mediate with one of the parties and chose to take the other two entities to trial. The trial was 5 weeks long, on Zoom and the Jury got it wrong in our opinion after deliberating less than a day. This happened a little over two weeks ago. Almost 5 years to the day of Hayley’s death. The entire battle has taken every ounce of energy I could spare. The trial took everything I had left. It is public now. We provided proof of negligence. Hayley died a week long painful death. Each day she could have been saved. She could have been saved up until an hour before she crashed. By doing that we hope that the medical professionals involved have made changes in their practice and that the hospital has made changes in protocol; both to increase the probability of this never ever happening to another family.

I have chosen today, because it is July 11, 2022. This is the five year anniversary of the elective procedure that Hayley chose to have. I want to tell her story. My plan is to walk myself through each of the days of that terrible two weeks. I hope I find silver linings or even silver dust in each retelling of MY version of the story. (legal disclaimer, this is my own personal opinion based on what I witnessed, information I have learned from legal proceedings and experts that were interviewed for the lawsuit.) If I am very lucky this will be the last time I have to tell this story in detail. But I need to do it. I have sat through days and hours of depositions, testimony and research for the last 5 years. My opinions are educated but they are only my own. Her story started long before July 11, 2017.

In Hayley’s Junior Year of High School after being on a competitive dance team since the 2nd grade, something went very wrong during a performance. She was in her third year as a member of the Eastlake High School dance team, a competitive program with an over zealous and insensitive Coach. By the end of the first year, we regretted making the switch from studio dance to high school sports. Her Studio experience had been a warm and supportive environment for her to enjoy her love for dance and at the same time navigate all the changes a little girl goes through from age 7 to 14. This was thanks to great coaches and kind teammates. This was not the case for her at Eastlake. I had a wonderful High School experience and it did involve a dance team. The difference was we were allowed to be more than a dancer or a popular girl in a very short skirt. I was able to hold student body office both my junior and senior year. I competed in the DECA program. I had high grades that got me into my first choice college. I had friends that were not on the team. We were good at the sport. We practiced a lot and worked incredibly hard. But not once did I ever feel like there was nothing more to me than that team.

That was not Hayley’s high school experience. This can be directly attributed to the Coach and the Administration at the school. This team won. It had a long history of winning. The coach would expect nothing less than for the program. It had to continue to win at all costs. You could not play another sport. At her studio team she was able to participate on a soccer team most of the years. She had a social life and lots of friends during the studio years. On the high school team it was difficult to hold down a part time job. You could not have any other commitments. It was EHS dance 24/7, WSPS. Wolf Strong Pack Strong. That WSPS still makes me want to gag. I am not able to speak about the present, but I can share my observations for the 8 years my kids attended the school.

WSPS. It was a motto. It had good intentions but for most students it was not positive. Only the popular kids were WSPS. It was not inclusive at all. So many students were left out. The computer nerds, the gamers, LGBTQ, the disabled, the bookworms, and so many more. WSPS was meant for an athletic and popular group of students that considered themselves better because they believed in a motto. Being chosen to be in the leadership class at this school was not always because you were a true leader or had the potential to learn those skills. I was very involved with the school. Part of my actual job was working with leadership classes at High Schools on a Heart Health awareness month. I had direct contact with these kids. The teacher was the football coach. Many of the kids I met and worked with in that class were some of the meanest and self absorbed teenagers I had ever met. On the other hand there were many sincere, kind and true leaders. But overall the Motto was a bunch of bullshit to the majority of the student body. A great idea. Poor execution.

The school website says; Eastlake believes that students need to develop the intellectual strength and character necessary for success now and in the future, as captured by our mission and motto Wolf Strong, Pack Strong (WSPS).

There were many positive aspects of the High School Team experience. She made some strong new friendships and strengthened existing ones. They spent a lot of time together and their shared adversities with the program was very bonding. They were a part of the school’s spirit and legacy. They cheered and performed at home football games. It was always a fun time under the Friday Night Lights. In their uniforms they felt special. Plus it was a lot less expensive than Studio dance. For a middle class family living in an affluent community during tough economic times, this was a huge blessing.

When Hayley made the team, at the first Parent’s meeting before the agenda started parents were chatting. I heard from more than one returning parent, “do not piss off the coach no matter what or she will take it out on your daughter”. I scoffed. If an adult in a power position hurts my child or any other child, you can be guaranteed I am going to say something. With Hayley’s guidance I did have to let a lot of battles go unfought. She saw that it was 100% true, piss off the Coach, your daughter suffers. You were not allowed to miss practice on holidays or ones scheduled during breaks. So there goes your family vacations. Her second year, during February mid winter break I took the kids along with my back up mom and her kids to their company house in Palm Springs. It was an amazing time. We had to fly standby on a family members airline benefits, but you do what you have to do to make things work in your budget. After finally getting there we knew coming back was going to be very difficult. The next practice was on Monday, Presidents Day. Just as we were leaving we found out if you missed that one practice you were disqualified from performing in the next competition. This was not even in the rulebook. It was a verbal command from the controlling coach. In the official rulebook you had to miss a certain number of practices for that to happen. We called those demerits back in my day.

Hayley was stressed out about getting back so we decided to attempt standby out of Los Angeles instead of Palm Springs. More options. As Sunday and Monday approached it was clear based on plane loads we were going to have a difficult time flying back in time. I alerted the coach. I let her know that if one seat was open I would be willing to let Hayley fly back on her own for the first time. We did everything we could to make that happen. On Monday morning it was clear we were not getting on a flight until Tuesday. I emailed the Coach to let her know. She did not indicate it would be a problem as it was unforeseen. I decided to be spontaneous and teach the kids to make lemonade out of lemons and took them on a one park one day pass to Disneyland. The coach found out. I didn’t hide it. At Tuesday’s practice Hayley called me on a break, she was very distraught. She had been cut from the dance because she had missed Monday. Others missed Monday but were not cut. I asked her if she wanted me to be mama bear or not. Her choice. She said yes. I went to the door at the end of practice. I motioned to speak to the Coach privately with Hayley. I explained again what had happened. Her initial response, “Well you didn’t try that hard to get a flight because you went to Disneyland instead”. Needless to say it spiraled from there. Hayley was a strong personality, she worked hard, yet the coach had her on her dislike list from the start. Probably because of me and because she was not the best dancer on the team. But she had the biggest heart for it. Long story shortened a tad, Hayley did not get to perform and the rest of her time on the team, that woman treated her like crap along with most of the other girls. These were girls! Not women. This was High School! This was not division one NCAA. This “Coach” treated them so badly. She messed with their psyche. Girls ended up with anxiety, eating disorders and so many injuries. I wanted Hayley to quit so badly. But she would not give the coach the satisfaction. She kept going with a smile on her face and made it her job to entertain and get her teammates to smile during the grueling practices. This won her the honor of being voted “class clown” on the team three years running. The speeches for this award at the end of the year team banquet always contained the line “Hayley is the one we can count on to lift our spirits when we are down”. The first year I wasn’t sure if Class Clown was a compliment. But it was and it really said a lot about who Hayley was.

Don’t even get me started on the costumes. Think little girls in pageants inappropriate. This became a problem for Hayley that year. Despite me being a late bloomer, Hayley blossomed that year. She was also dealing with a hormone disorder that made her gain weight and her breasts became very large. Her flat friends said they wished she could share. Many of the costumes were backless or low cut requiring special dancer undergarments. This meant strapless bras or backless bras. Have you ever seen a Ballerina with triple Ds? They assume dancers will be petite in this area. Hayley was the one that was not. I drove to every dance store in the western part of our state trying to find a solution to this problem. I ordered a pile from online. It looked like it had thrown up nude colored bras on our kitchen table. (Poor Henry) I begged the coach for help. She did not give a fuck. But she should have. During that first competition, during their performance, Hayley’s right breast decided to make an appearance. She came out of the costume. It is hammered in to their heads, no matter what happens you smile and keep dancing. If that hat falls off leave it. If you lose a shoe, leave it. The performance always goes on. Hayley as a rule follower, took this very seriously. She kept going doing her best to shrug, sneak a pull on the top during a floor move, anything to stop this humiliation. I was supposed to video tape the performance, I stopped. I watched her be humiliated for over 3 minutes with an audience of other teenagers. There was nothing I could do. When they exited the floor I ran to the hallway to find Hayley crying outside the locker room. I held her. I told her I was proud of her. Then the Coach walked out and started chewing her out. Then she started in on me for not finding a bra to hold up and work with that awful costume. Yes. She did. I made it clear that I had spent weeks trying to find the solution and thought I had. That she needed to get involved and help her dancer. She was not empathetic or kind. She was mean and humiliated Hayley further.

Hayley and I argued all the way home. I told her she had to quit. She refused. An email response from the coach indicated that they would make a change to the costume for everyone on the team. Many girls thanked us, indicating that they had felt uncomfortable not having better support and coverage. This would allow all of them to wear a normal and supportive bra before the state competition that was a few weeks away. State was the one day they start working towards the previous summer. The routines Hayley had been a part of the first two years had placed first in the state. It was even held in the same venue I had competed in.

As it approached I was not getting an answer as to what the costume solution was. I should have known. The solution was that Hayley was pulled from the routine a week before state and the coach therefore does not have to make one change to her awful costume. This was a win for her. I took it to the athletic director. I took it to the administration. It took a week, a day before they left for state, for them to tell the coach she really should have changed the costume. Thanks guys for taking a week to half ass do the right thing. Hayley, her Dad, her brother and I still went east across the state to cheer the team on. Hayley stood on the sidelines. She was the only team member not allowed to dance in any of the three routines. I was so proud of the grace she displayed.

I went to the administration. I escalated the situation. You cannot in a PUBLIC school penalize a girl for having large breasts, that is not in the rules. You can’t body shame them with tiny costumes. I told the vice principal, “I am telling you right now, that even though Hayley would be a 4th year senior on the team and never had a returner in that situation not made the team, even though they were still required to try out for their spot, the Coach would cut Hayley from the team. She would do this to punish Hayley for daring to cross her. Tryouts were that week. Results would come out on Saturday. I told him if my prediction was correct to expect me to be sitting in a chair outside of his office before he arrived or had coffee on Monday.

Hayley and I sat there at 6:30 am on Monday, eyes red and swollen from a weekend of crying. I even left messages for the coach begging her not to do this. I promised I would never speak to her that year, she wouldn’t even know I existed. No response. Hayley faced after 10 years on a team, not having a team for her senior year. None of the milestones. Last football game, senior night, honoring her parents, nothing at all. She couldn’t go back to her studio team. They had moved on above her ability. There were so many meetings, the district brass was involved, not one person was willing to force the coach to reverse her decision. She tried to say it was not her decision, she had brought in judges from other teams. What she didn’t know was that one of my coworkers knew one of those judges. When asked she gladly confessed that the Eastlake Coach told the judges that under no circumstance was this one girl to make the team. Yes, the Coach was an adult woman. Do you want to know what her day job was? She was a school counselor at Eastlake. Hayley was that “girl”.

Every administrator at the school and the district level were men. The district hired an attorney to do an independent investigation of the situation. At least she was a woman. She looked at the costume. She interviewed Hayley, the coach, other teammates. We were hopeful. We were naïve. The attorney took until the end of December to file her report. Hayley had missed football season. She didn’t go to one game. She had teammates bully her at school when she wore one of her past year’s team hoodies. “You can’t wear that, you are not on the team”. Hayley was depressed. Her weight went up because she went from being physically active for 2 to 3 hours at least five days a week to staying home and being sad. It was heart breaking. She was not looking forward to Prom or other senior year milestones. Her close friends were her lifeline. She still stayed positive in public, she made people laugh, she made people feel good, she was an amazing friend if you were lucky enough to call her that.

The attorney reported to the superintendent that yes, Hayley had clearly been discriminated against, the coach was not a positive influence, had no business influencing teenage girls, and that the administration (men) had botched the entire situation. She indicated we had grounds for a lawsuit. We didn’t care, Hayley had just wanted to dance. By the time it worked its way through the system the team was way into their practices for the State competition. It was too late to make it right for Hayley. The coach won again.

Shortly after the costume malfunction is when Hayley mentioned wanting to have a breast reduction. We were not on board. We understood why she would want this but our fear was that just like tattoos you don’t make that decision unless you have wanted the same thing for more than 4 years. We told her that she may not be done growing. I had gained a cup size when I turned 18. We told her that if she still wanted the procedure after college we would support the decision.

She looked forward and headed off to WWU for her freshman year of college. She had an amazing roommate that she had met online. She loved the school. She loved that she could come home on weekends when she wanted to and work her hostess job at the local café. She loved that my job brought me near her many times. We were able to go no longer than 2 weeks without seeing each other. We talked many times each day while I was on the road for my job. She was intensely homesick. We were both struggling. My person was not in my house every single day. We had not let her take her car up fall quarter because we believed, rightly so, she would come home every chance she got if she had an easy ride. She was so homesick and probably depressed still. In January we let her take her car. This helped so much. Just knowing she could come home if she needed to seem to reduce her anxiety. She was going to the gym. She was talking about trying out for the school hip hop team.

It was Spring Break when she brought up the idea of the breast reduction surgery again. I had failed to notice that her breasts HAD continued to grow. She was uncomfortable. It was difficult to find clothes to fit. She was in pain. It made it difficult to be physically active. It was keeping her for trying out for the non competitive dance team. Her self confidence was low. At this time my current job was ending. I agreed that we would go see a surgeon and get an opinion and a cost estimate. Her primary doctor was supportive. I found out the name of a surgeon that was highly recommended by several women that had reconstructive surgery after breast cancer. These patients said he was the best, he was a perfectionist but not a man to show his emotions. Just a caring and talented doctor in a quiet way; so don’t be turned off by that, he was who they trusted. I warned Hayley. We discussed the costs. I was going to be job hunting with a kid in college. She accepted that if my current insurance would pay for the procedure that we would move forward, but if not, we would need to postpone and she would need to contribute to pay for it. I really thought it would not be approved.

On our first consult with the doctor, we both thought he was fantastic. He and Hayley immediately clicked. Hayley had a way of connecting with people quickly. She had a way to know who was a good person and who was not. She trusted him and was not uncomfortable undressing. When she did I almost fell out of my chair. I said out loud “OMG”. He gave me a questioning look, I explained I had no idea they had gotten that large. She wasn’t at home now walking around naked like she tended to do. With tears in my eyes I said “Hayley, honey, I get it”. She was a 34 DOUBLE H. Yes, that was two. HH. I didn’t even know there was such a size. Her pain and discomfort was obvious. The doctor agreed that she would benefit extremely from this procedure. He said he could help her and that it would be life altering.

The insurance approved the procedure quickly and she was scheduled for July 11th. He was going to be leaving on a big trip and wanted to get her in before he left so she had the full summer to recover before going back to school. I made sure my insurance stayed in place until the end of July. My job officially ended on July 7th. We felt this was a good decision for her. The opportunity to regain her self confidence, be healthier and dance her heart out.

July 11, 2017. Life Altering.